The Coalition for Quality at the End of Life (CQEL)
CQEL is made up of leading health systems, providers,
insurers, citizen groups, governmental agencies, and philanthropic, faith-based, and other organizations
concerned about the quality of
care that is available to seriously ill and dying people and their families in Western Pennsylvania.
Mission
CQEL's mission is to improve end-of-life care in the region by identifying and collaborating
with key stakeholder groups. CQEL works to achieve its mission by engaging the community to
build demand for better end-of-life care, building capacity among local health care institutions
for the delivery of skilled and compassionate care, focusing attention on the regulatory and
financial barriers to quality end-of-life care,
and by promulgating appropriate standards and measures.
Steering Committee
Chair: David Barnard
| Robert Arnold |
| Judy Black |
| Nancy Zionts |
Project Coordinator: Paige Hepple
Organizational Members
- Allegheny County Bar Association
- Allegheny County Department of Human Services, Area Agency on Aging
- Allegheny County Medical Society
- Allegheny General Hospital, West Penn Allegheny Health System
- Bethany Hospice
- Celtic Healthcare
- Center for Minority Health, University of Pittsburgh
- Children's Hospital of Pittsburgh
- City of Pittsburgh, Department of Public Safety, EMS
- Commonwealth of Pennsylvania, Department of Aging
- Comprehensive Palliative Care Program, UPMC Presbyterian-Montefiore
- Department of Emergency Medicine, University of Pittsburgh
- Eastern Area Adult Services
- Elder Law Offices of Petrich & Sykes, LLC
- Family Hospice and Palliative Care
- Forbes Hospice
- Good Grief Center
- Health America, Coventry Health Plans
- Helping Hands-Healing Hearts
- Highmark Caring Place, Highmark Caring Foundation
- Highmark, Inc.
- Hospice and Palliative Nurses Association
- Hospital Council of Western Pennsylvania
- Institute on Aging, University of Pittsburgh
- Institute to Enhance Palliative Care, University of Pittsburgh
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CQEL identified and formed working groups in 2006 around the following five priorities for action drawn from
recommendations of the Pennsylvania Task Force for Quality at the End of Life,
which are included in its report Improving End-of-life Experiences for Pennsylvanians:
Links to the Report and Publicity
- Demonstration Projects
- Documenting Treatment Preferences
- Engagement of Underserved Communities
- Professional Education, Accreditation, and Licensing
- Public Awareness/Education Campaign
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| I. |
Demonstration Projects: Work
with agencies such as the Departments of Health, Health Care Reform, Public Welfare, Aging, and the PA Health
Care Cost Containment Council (PHC4), along with CMS to design and/or implement demonstration projects aimed
at (1) improving quality at the end of life and (2) studying the effect of risk-adjusted payments to Medicare
and Medicaid managed care plans for patients with life-limiting, eventually fatal chronic illnesses in an effort
to encourage continuity across time and health-care delivery settings, including home-based care. |
| II. |
Documenting Treatment Preferences: Encourage
the Department of Health, the state legislature, and accrediting bodies such as JCAHO and CHAP to adopt a
standardized tool for documenting people's wishes, such as the POLST (Physician Orders for Life-Sustaining Treatment),
to be used statewide and be transferable following patients to all care settings to improve quality of care across settings.
Work to develop and implement a pilot for implementation in the region. |
| III. |
Engagement of Underserved Communities: Engage underserved communities, such as
minorities and people with disabilities, in discussions and workshops that assess their needs and involve community members in setting priorities for improvement of end-of-life care. |
| IV. |
Professional Education, Accreditation, and Licensing: Pursue
the following strategies for improving palliative and end-of-life care education:
- Advocate for the utilization of existing structures and systems to ensure that health care professionals, who provide care in any setting,
as well as those who regulate institutions, adopt and enforce standards for education. (e.g., State professional licensing
boards should require that candidates demonstrate evidence of training in palliative care/core end-of-life domains; agencies
that regulate long-term care facilities should require evidence of staff training in end-of-life care; state surveyors of
long-term care facilities should receive necessary training in end-of-life care.)
- Work with accrediting bodies to require educational institutions to incorporate core palliative care educational domains in their curricula.
- Partner with professional organizations (e.g., American Medical Association and the National Association of Social Work) to design/sponsor train-the-trainer
programs for faculty responsible for end-of-life instruction and continuing education in core end-of-life domains at local, regional, state meetings.
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| V. |
Public Awareness/Education Campaign: Work with various media outlets and private and
public partners (i.e. the Governor's office and Departments of Health, Health Care Reform and Aging) to implement
the regional arm of a statewide public awareness/education campaign. The intention of this campaign is to improve
Pennsylvanians' access to palliative care and end-of-life services by helping them become more informed about
palliative care and be proactive consumers of quality health care services. This campaign would be characterized
by the following:
- Include a web-based statewide clearinghouse for Palliative Care for health care professionals and consumers.
- Be informed by the life situation and palliative care needs of a variety of groups and individuals including
the elderly, people with disabilities, and children and their families.
- Involve individuals from the community such as hospice and palliative care educators, spokespersons, outreach
workers, and liaisons.
- Encourage the Governor's office to mandate that the Departments of Health and Aging and other appropriate state
agencies jointly prepare a "State of End-of-Life Care Report" every two years to describe ongoing state initiatives
and to track changes over time.
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CQEL Contact Information
3708 Fifth Avenue, Suite 300
Pittsburgh, PA 15213
Phone: (412) 802-6249
Fax: (412) 647-5877
jph29@pitt.edu
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